The PKD Foundation is committed to being patient centric in our research, education and advocacy programs, and values the patient/caregiver perspective on the research proposals we fund. For this purpose, PKDF is seeking stakeholders to serve on our Grant Review Committee. We welcome applications from patients, caregivers, and parents of children with PKD who are passionate and committed to serve as reviewers for PKDF. Successful applicants will undergo new stakeholder training and will participate in the annual grant review January - April 2022. For more information about the Stakeholder Review Program, check out our webpage at https://pkdcure.org/become-a-stakeholder-reviewer/ Please fill out the below with details of why you'd like to join our Committee. Applications will be accepted through October and selections for new members will be made in late October 2020. For technical assistance or questions, email research@pkdcure.org.
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Email
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What is your highest level of education? Some high school High school graduate Some college, but no degree Trade or technical school Graduated from 2-year college program Graduated from 4 or 5 year college program Post graduate degree Prefer not to answer
What is your occupation?
How familiar are you with the PKD Foundation in general? I am not familiar I have attended at least one Walk for PKD event I have attended PKDF national conference (PKDCON) I have attended PKDF educational webinars I volunteer as a leader with my local Chapter I follow PKDF on social media and / or am signed up for email updates Other
How familiar are you with recent advancements of PKD research in general? I am not familiar I occasionally search the web for PKD related research updates I regularly check PKDF’s website or social media posts to learn about activities and research advancements PKD research or clinical care is the primary focus of my occupation Other
Have you served as a grant reviewer for another organization? Yes No
If yes, which organization's grant review committee did you participate in and when did this occur?
Prior to serving as a Stakeholder Reviewer, will you be able to attend an hour training webinar in January 2021 to learn more about PKDF's research review process? Yes No
If selected as a member of the Stakeholder Review Committee, would you be able to commit to a three year period of participation that would include a one-day Grant Review Committee meeting in March/April and subsequent Stakeholder Review Committee meeting Yes No
Why would you like to serve on the Stakeholder Review Committee? How have your personal experiences prepared you for this volunteer position?
Comments
Thank you for your interest!